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Medical Professionals & Resources

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ASIA

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American Spinal Injury Association

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ASIA establishes and promotes standards of excellence for all aspects of health care of individuals with spinal cord injury from onset throughout life.

@asia_sci
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Allison Kessler Vear

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Dr. Allison Kessler Vear

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Attending Physician and Assistant Professor of Physical Medicine and Rehabilitation

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Andrea Dalzell

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Andrea Dalzell

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Registered Nurse & Disability Rights Advocate

@theseatednurse
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Blake Perkins

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Blake Perkins

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Research Therapist at Cleveland FES Center and Physical Therapist at MetroHealth.

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Bradley Frazee

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Dr. Bradley Frazee

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Alameda County Medical Center

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Brenna Warnick

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Brenna Warnick

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Recreational Therapist at Hartford Hospital

@brennambean
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CSRO

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Canadian/American Spinal Research Organization

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The CSRO is dedicated to funding research to find a cure for paralysis caused by spinal cord injury and to reducing spinal cord injuries through awareness and prevention programs.

@csrocanada
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Carlie Cook

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Carlie Cook

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Recreational Therapist

@c.cook20
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Cheri Blauwet, MD

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Cheri Blauwet, MD

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Cheri Blauwet, MD is an Assistant Professor in Physical Medicine and Rehabilitation at Harvard Medical School and an attending physician at the Brigham and Women’s Hospital and Spaulding Rehabilitation Hospital, where she also serves as the Disability Access and Awareness Director for Spaulding Rehabilitation Network.

@cheriblauwetmd
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Chris McCulloh, MD

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Chris McCulloh, MD

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General Surgery Resident, Morristown Medical Center/Atlantic Health System Research Fellow in Pediatric Surgery.

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Cleveland FES Center

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Cleveland FES Center

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The Center focuses on the application of electrical currents to either generate or suppress activity in the nervous system. This technique is known as functional electrical stimulation (FES)

@cleveland_fes_center
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Danielle Lancelot Watson

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Danielle Lancelot Watson

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Occupational Therapist

@d_machine223
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Danielle Sheypuk, Ph.D

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Danielle Sheypuk, Ph.D

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Licensed Clinical Psychologist at South Beach Psychiatric Center

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Dinesh Palipana

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Dr. Dinesh Palipana

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Emergency room doctor at Australia’s busiest emergency department at Gold Coast University Hospital.

@dineshpalipana7
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Dr Mitchell Tepper, PhD, MPH

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LIVING Your LIFE: SEXUALITY FOLLOWING SPINAL CORD INJURY

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20 PDF download by Mitchell Tepper, PhD, MPH, author of Regain That Feeling: Secrets to Sexual
Self-Discovery.

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Dr. Christian Ostheimer

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Board-certified Radiation Oncologist with MD degree from MLU Halle-Wittenberg, Germany. Trained at Memorial Sloan Kettering Cancer Center (USA), Tri-Service General University Hospital (Taiwan), Vienna University General Hospital (Austria) and the Oxford Institute of Radiation Oncology (OIRO, Oxford University, United Kingdom). More than 10 years of clinical experience in cancer treatment / Oncology with a strong academic footprint in clinical, translational and molecular cancer research.

@ostheimer.christian
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Dr. Daniel Grossman

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Dr. Daniel Grossman

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Emergency Room doctor at Mayo Clinic in Rochester, NY.

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Dr. Jyh-Hann (John) Chang

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Dr. Jyh-Hann Chang

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Dr. Jyh-Hann (John) Chang is a Clinical Neuropsychologist and is Board-Certified in Rehabilitation Psychology.

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Dr. Mitchell Tepper

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Sex and Paralysis Video Series

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Sex and Paralysis Video Series by Dr. Mitchel Tepper.

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Dr. Mitchell Tepper

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Sex and Paralysis Video Series

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I’m Dr. Mitchell Tepper. And I’m an AASECT Certified Sexuality Educator and Counselor dedicated to helping people with disabilities and health professionals grasp the full potential of sexual response and expression post-injury or illness.

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Dr. Rex Marco

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Dr. Marco believes his accident has given him newfound understanding and empathy for his own patients, and is part of a larger plan for his life.

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Dr. William Tan

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Dr. William Tan

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Dr William Tan contracted polio when he was two and became paralysed from the waist down. Dr Tan is an accomplished sportsman who is dedicated to championing as well as fundraising for charities locally and internationally through his ultra-marathon endeavours around the world for the past 20 years.

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EatRight

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EatRight

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Home-Based Weight Management Program for Individuals with Spinal Cord Impairments.

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Facing Disability

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Facing Disability

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Our mission is to connect families dealing with paralysis with the life experiences of others just like them, and to provide medical information and resources.

@facing_disability
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Feranmi Okanlami MD MS

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Feranmi Okanlami MD MS

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Advocate for people with disabilities, speaker & entrepreneur, physician dedicated to diversity, equity, inclusion.

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Gillian Aitken

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Gillian Aitken

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Student at Duke University’s nurse practitioner program.

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Gordon Ninde

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Gordon Ninde

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Nurse case manager at Mercy Regional Medical Center.

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Hayley Whitman

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Healing Legacy Counseling

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Healing Legacy Counseling is a private practice in Stow, Ohio offering therapy to help you to heal from past trauma and abuse and connect with other people.

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Healthcare Resources for Women with SCI

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Spinal Cord Injury and Disability Research Center (SCIDR) at TIRR Memorial Hermann

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Our mission is to improve access to healthcare services, information, and education to bridge existing information gaps for women with SCI. The purpose of this website is to provide a directory of links to consumer-based information, education, and resources on healthcare topics for women after SCI (e.g., videos, downloadable books).

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Holly Noon

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Fruitful Elements

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Holly is a Certified Holistic Nutritionist (CNP) living in Toronto.

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ICORD

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ICORD

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ICORD is a spinal cord injury research centre of the UBC Faculty of Medicine and VCH Research Institute. We are located in the Blusson Spinal Cord Centre at Vancouver General Hospital, 818 West 10th Avenue.

@icord_sci
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ISCoS

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International Spinal Cord Society - ISCoS

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Promotes the highest standard of care in the practice of spinal cord injury for men, women and children throughout the world. Through its medical and multi disciplinary team of Professionals ISCoS endeavours to foster education, research and clinical excellence.

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Improving Sexual Satisfaction in Persons with SCI

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Improving Sexual Satisfaction in Persons with Spinal Cord Injuries: Collective Wisdom

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Sexuality is an important part of life, and it is necessary for clinicians to have a specific format in which to address sexual issues with their patients. A systematic approach to working with patients with spinal cord injury (SCI) to improve their sexual functioning and response is presented.

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Jessica Brito

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Take Control Therapy

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Being Hispanic, I am highly driven to help my client’s find the balance between the collective and the individual. Growing up in a collective culture living in an individualistic culture has taught me the importance of understanding both.

@takecontroltherapy
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Jim Post

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Jim Post

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Chief, Internal Medicine at U.S. Department of Veterans Affairs

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Joanne E. Smith

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Fruitful Elements

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Joanne Smith is a Certified Nutritionist who graduated with first class honors from the Institute of Holistic Nutrition in Toronto.

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Kathryn Georgiou

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Kathryn Georgiou

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Registered nurse.

@katulllla
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Kelly Brush Davisson

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Kelly Brush Davisson

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Pediatric Nurse Practitioner at Lakeside Pediatrics

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Kelly Morse Canterbury

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Kelly Morse Canterbury

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Doctor of Optometry

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Kerri Morgan

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Kerri Morgan

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Assistant professor of occupational therapy and neurology at the Washington University School of Medicine.

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Lindsey Freysinger

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Lindsey Freysinger

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Studied Healthcare Administration and Nurse Leadership at University of Michigan.

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Lindsey Runkel

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Lindsey Runkel

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Registered Nurse at Yale New Haven Hospital.

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LivingWithSCI.ca

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LivingWithSCI.ca

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We’re a team of rehabilitation clinicians and people living with spinal cord injury who’ve been where you are, working together to bring you the information you need for managing your life after spinal cord injury.
This resource is designed to equip you with the basic information you need to be informed and to understand what you will learn in rehab about how your body works after spinal cord injury.

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MWG Mobile App

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My Wheelchair Guide

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My Wheelchair Guide mobile app features: Self-assessment & maintenance checklists. Customizable to-do lists. Wheelchair skills videos. Illustrations on wheelchair types, parts, & accessories. Critical health considerations. Organized hub that integrates the contacts essential to getting a wheelchair. Ability to take notes within the app using text, pictures, or voice records. Q&A section

@unitedspinal
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Matt DiLillo

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Matt DeLillo

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Occupational Therapist at OSCIL

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Michelle Kephart

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Michelle Kephart

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Student Mentor at Western Governors University

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Mike Welch

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Mike Welch

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Doctor at John H. Stroger Jr. Hospital of Cook County.

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NASCIC

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The North American Spinal Cord Injury Consortium

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The North American Spinal Cord Injury Consortium (NASCIC) brings together like-minded organizations, individuals, and groups to improve research, care, and policies impacting people living with spinal cord injury, their families, and community.

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NCART

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National Coalition for Assistive and Rehab Technology

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A national association of suppliers and manufacturers of Complex Rehab Technology (CRT) products and services that are used by individuals with disabilities and medical conditions

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NCART

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CRT Information and Advocacy Tools

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One of the biggest challenges in protecting and promoting access to Complex Rehab Technology (CRT) is a lack of understanding as to the people, products, and processes involved. To help tell the CRT story, a variety of educational documents, studies, and presentations have been developed.

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NCBI

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Journal of Spinal Cord Medicine

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Archive of the Journal of Spinal Cord Medicine 2005 to current day.

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NCHPAD

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National Center on Health, Physical Activity and Disability

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Founded in 1999, the National Center on Health, Physical Activity and Disability (NCHPAD) is a public health practice and resource center on health promotion for people with disability.

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NWRSCIS

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Northwest Regional Spinal Cord Injury System

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The regional center of spinal cord injury care, research and education in the Department of Rehabilitation Medicine at the University of Washington (University of Washington and Harborview Medical Centers).

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NWRSCIS

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The SCI Empowerment Project Health Guides

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A wide variety of downloadable PDF health guides on SCI related topics.

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New Mobility Magazine

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Wheels on Campus: A Guide to Wheelchair-Friendly Higher Education

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We surveyed hundreds of colleges and interviewed more than 80 wheelchair-using students and disability service leaders to identify 20 colleges that create wheelchair-friendly campuses and cultures.

@newmobilitymag
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Nicole Rabbani

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Nicole Rabbani

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Occupational Therapist at Fairfield-Suisun Unified School District

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PVA

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Paralyzed Veterans of America

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For over 75 years, Paralyzed Veterans of America has been the leading advocate in treatment, care, and medical breakthroughs for people with SCI/D. As a part of our mission, we have collaborated with experts to create a variety of publications for different audiences to ensure that individuals with SCI/D are able to live their best lives possible.

@pva1946
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Patty Traylor Kunze

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The Rollin' RNs

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As The Rollin’ RNs, we look forward to using our nursing experience as health care professionals who live our lives with an SCI to write articles that pertain to health topics of most interest for our (the SCI) community.

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Physiotherapy eXercises

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Physiotherapy eXercises

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A free tool to create exercise programs for people with spinal cord injuries.

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Pleasure ABLE

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Pleasure ABLE

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A sexual device 25 page PDF manual for people with disabilities.

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Preservation of Upper Limb Function

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Preservation of Upper Limb Function: What You Should Know A Guide for People with Spinal Cord Injury

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A Guide for People with Spinal Cord Injury

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SCI BC Sexual Health

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Spinal Cord Injury BC

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About the Sexual Health Team
We are a team of sexual health clinicians and specialists in Vancouver, BC providing specialist sexual health services, education and research in British Columbia, Canada. For more on what we do and who we are, or if you just have some questions, check out the About Us page.

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SCI Forums

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SCI Forums by University of Washington

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SCI Forum series: Discussions and Presentations on issues related to living with a spinal cord injury hosted by the University of Washington.

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SCI Thrive

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SCI Thrive by University of Washington

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SCI Thrive is an online self-management program for individuals with spinal cord injury that was developed at the University of Washington Department of Rehabilitation Medicine.

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SCIPT

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International Network of SCI physiotherapists (SCIPT)

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The International Network of SCI physiotherapists (SCIPT) is a not-for-profit initiative of physiotherapists worldwide. It is for physiotherapists working in the area of spinal cord injuries although other physiotherapists are welcome to join. We are an official discipline-specific subgroup of the International Spinal Cord Society (ISCoS).

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SCIRAS

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Spinal Cord Injury Research and Science

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The Report For The Seriously Dedicated Community Interested In Research and Science for Patients (not projects) To Treat or Cure Chronic SCI Paralysis

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SCItrials.org

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SCItrials.org

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Find and Apply for the latest trials to find a cure for spinal cord injuries and paralysis. Carefully curated by scientific experts.

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SPINAL CORD INJURY MEDICINE

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Spinal Cord Injury Medicine. 1. Etiology, Classification, and Acute Medical Management

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This self-directed learning module highlights basic management and approaches to intervention--both established and experimental. Eight page downloadable PDF.

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Sexuality After SCI

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Sexuality After SCI

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This video project was created through a grant from the Craig H. Neilsen Foundation and support from community partners to provide more educational resources about sex, sexuality and intimacy after spinal cord injury.

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Shepherd Center

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Shepherd Center

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Understanding SPINAL CORD INJURY. What you should know about spinal cord injury and recovery
These videos, developed by Shepherd Center, uses simple language and images of real people who have sustained a spinal cord injury, as well as medical experts and advocates.

@shepherdcenter
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Shepherd Center

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What You Should Know About Spinal Cord Injury

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What you should know about spinal cord injury downloadable PDF.

@shepherdcenter
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Spinal Cord

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Spinal Cord Journal

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Spinal Cord is a specialized, international journal that has been publishing spinal cord related manuscripts since 1963. It appears monthly, online and in print, and accepts contributions on spinal cord anatomy, physiology, management of injury and disease, and the quality of life and life circumstances of people with a spinal cord injury.

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Spinal Cord Injury (SCI) Model Systems

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Spinal Cord Injury (SCI) Model Systems

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Spinal Cord Injury (SCI) Model System supports innovative projects and research in the delivery, demonstration, and evaluation of medical, rehabilitation, vocational and other services to meet the needs of individuals with SCI. There are 14 sites in the United States.

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Spinal Cord Series and Cases

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Spinal Cord Series and Cases

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Spinal Cord Series and Cases is a Transformative Journal; authors can publish using the traditional publishing route OR via immediate gold Open Access. Our Open Access option complies with funder and institutional requirements.

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Spinalis

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Food, weight and health for people with spinal cord injury

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The purpose of this brochure is to help you gain knowledge and awareness about
the risk of developing overweight and obesity, what you can do to avoid becoming too heavy, and the general importance of diet for health and wellness.

@spinalis
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Spinalis

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The art of healthy living with physical impairments

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This book The Art of Healthy Living with Physical Impairments is a lifestyle
guide. The information and tips provided are intended to inspire and motivate toward implementing healthy lifestyle habits.

@spinalis
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Trauma: Spinal Cord Injury

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Trauma: Spinal Cord Injury

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KEYWORDS:
 Spine  Spine trauma  Spinal cord injury  Spinal cord syndromes  Spinal shock  Spine immobilization
15 page downloadable PDF.

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UAB-SCIMS

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The UAB-SCIMS Information Network

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The University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS) maintains this Information Network as a resource to promote knowledge in the areas of research, health and quality of life for people with spinal cord injuries, their families, and SCI-related professionals.

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UAB-SCIMS

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The UAB-SCIMS Information Network

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The UAB-SCIMS offers a series of Fact Sheets on selected topics related to SCI. Some Fact Sheets are products of the University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS).

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UCSF

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Spine and Spinal Cord Injuries

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Spine and Spinal Cord Injuries by William Schecter, MD downloadable 64 page PDF.

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United Spinal

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Ready to Roll

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Ready to Roll is designed to assist in preserving the health and safety of individuals with spinal cord injury or disease (SCI/D) in times of uncertainty and upheaval due to natural or human-caused disasters through advanced planning, along with the preparation of professionals and local agencies.

@unitedspinal
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United Spinal

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United Spinal

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United Spinal maintains a library of free disability publications related to spinal cord injury/disorders (SCI/D) as well as publications of interest to all individuals with a disability.

@unitedspinal
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United Spinal Resource Center

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Spinal Cord Injury Resource Center

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Welcome to United Spinal's Spinal Cord Resource Center. Here you can submit questions on any aspect of Spinal Cord Injury/Disease or get information and resources that may help you resolve a situation including local support.

@unitedspinal
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Yes, You Can!

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Yes, You Can! A Guide to Self-Care for Persons with Spinal Cord Injury

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274 page downloadable comprehensive guide to understanding and living with spinal cord injury.

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